Last month (September, 2021) was filled with activity here at the SalfordFASD research team, as we remain passionate to always talk about fetal alcohol spectrum disorders (FASD). We had our much anticipated prevalence study published which attracted significant media attention, the UK’s Department of Health and Social Care published a Needs Assessment report for FASD which mentioned our research, and we donned our FASD T-shirts to celebrate FASD awareness day! Media organisations such as the BBC and other local media outlets published interesting stories and it was heartwarming to realise the positive attention our research is creating. You can hear Penny Cook’s interview here; Robyn McCarthy’s podcast can also be accessed here, while Alan Price participated in a panel of discussion.
Talking about FASD
We like to talk about FASD and our research. We give talks for groups including academics, local professionals and families. Recently, we have done presentations on our research to community paediatric staff, CAMHS teams and primary school teaching staff. Depending on the audience, sometimes we do an introduction to FASD as a condition. For other audiences, we do a more detailed look at a particular research project, including the design of the study, sample size strengths and limitations of our results and implications of the findings.
We are always happy to host a Q&A session after. We have found the Q&A sessions are invaluable as open discussion about FASD can be an effective way to tackle misinformation and stigma associated with the condition. This also offers us the opportunity for two-way discussions, helping us with feedback on the potential impact of our work and help us to make more informed recommendations for policy and further research.
Titles of talks we have given recently include:
Prenatal Alcohol exposure and FASD: an introduction
Unravelling FASD and early trauma
How many children in Greater Manchester have FASD?
“I’m always up against a Brick Wall with them” Parents’ experiences of accessing support for their child with a newly recognised developmental disorder
Neuro-developmental findings from the ADD GM study: Extent of previously undetected Developmental Disorders in children assessed at three primary Schools in England
FASD and the criminal justice system
Below is some of the feedback from our recent presentation to Manchester Community Paediatricians for their Continuing Professional Development (CPD) event:
“The study team have done a huge amount of work in setting this up and highlighted that FASD is probably more common than we think”
“Very pertinent topic related to cases we do see. Clear slides, thorough explanation at the right level for our audience“
Please contact FASD21@salford.ac.uk if you would like us to talk to your group.