{"id":2086,"date":"2024-07-17T09:58:39","date_gmt":"2024-07-17T09:58:39","guid":{"rendered":"https:\/\/hub.salford.ac.uk\/applied-health-research\/?page_id=2086"},"modified":"2025-06-20T14:59:26","modified_gmt":"2025-06-20T14:59:26","slug":"expanding-the-kidney-information-network-to-innovate-and-drive-impact","status":"publish","type":"page","link":"https:\/\/hub.salford.ac.uk\/applied-health-research\/expanding-the-kidney-information-network-to-innovate-and-drive-impact\/","title":{"rendered":"Expanding the Kidney Information Network (KIN) to Innovate and Drive Impact"},"content":{"rendered":"\n<p>The award-winning Kidney Information Network (KIN) connects people living with chronic kidney disease in North of England. Innovation funding drives the creation of KIN UK; multiple resilient micro-communities, improving health literacy\/equitable information access for &gt;10,000 people living with CKD, carers and clinicians.&nbsp;<\/p>\n\n\n\n<p>The&nbsp;Kidney Information Network&nbsp;is a joint venture between the University of Salford, NHS trusts and kidney patients in response to patient demand to develop a mechanism to enable them to talk to other patients and share experiences. Bridging collaboration with leading charities\/NHS Trusts to generate \u2018live\u2019 innovative sustainable research datahubs.<\/p>\n\n\n\n<p>KIN micro-communities, set up as Facebook (FB) groups, connected via a&nbsp;<a href=\"https:\/\/www.kidneyinfonet.org\/\">KINET hub<\/a>, service geographical locations. Cross-platforms are used: YouTube (Kidney Information Network), Twitter (@GMKINet), and Instagram to expand network reach.&nbsp;<\/p>\n\n\n\n<p>Currently, KIN consists of networks set up in<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><a href=\"https:\/\/www.kidneyinfonet.org\/kin\/gmkin\/\">Greater Manchester KIN (GMKIN)<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/www.kidneyinfonet.org\/kin\/camkin\/\">Cheshire &amp; Merseyside KIN (CaMKIN)<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/www.kidneyinfonet.org\/kin\/lasckin\/\">Lancashire &amp; South Cumbria (LaSKIN)<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/www.kidneyinfonet.org\/kin\/bradkin\/\">Bradford and Airedale KIN (BrAdKIN)<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/www.kidneyinfonet.org\/kin\/york-kin\/\">York KIN<\/a><\/li>\n\n\n\n<li>A national\u00a0<a href=\"https:\/\/www.kidneyinfonet.org\/kin\/carers-kin\/\">Carers KIN<\/a><\/li>\n<\/ul>\n\n\n\n<p>Additional sites are in development; if you wish to set up a KIN in your area please contact us using the <a href=\"https:\/\/www.kidneyinfonet.org\/communities\/start-kin\/\">form<\/a><\/p>\n\n\n\n<p><strong>Why set up a KIN?<\/strong><\/p>\n\n\n\n<p>Evidence demonstrates that KIN communities improve self-efficacy, build social capital, reduce isolation, improve mental health outcomes, increase users\u2019 health awareness, and facilitate equitable access to information and support for people living with CKD. The KIN expansion creates multiple \u2018live\u2019 datahubs: to collate longitudinal patient\/carer experience data, test future novel research solutions (AI), increase digital research capacity embedding new fellows (carers\/digital methods), explore new placement opportunities for students and social media clinician education.<\/p>\n\n\n\n<p>As part of the expansion and sustainability plans, KIN received institutional agreement to establish a KIN Community Interest Company.<\/p>\n\n\n\n<p><strong>Fund<\/strong>ing<\/p>\n\n\n\n<p>RKE Innovation Strategy<\/p>\n\n\n\n<p><strong>Team&nbsp;<\/strong>&nbsp;<\/p>\n\n\n\n<p><strong>Principal Investigators:<\/strong><\/p>\n\n\n\n<p><a href=\"https:\/\/salford-repository.worktribe.com\/person\/1153645\/paula-ormandy\">Paula Ormandy<\/a> \u2013 Joint PI<\/p>\n\n\n\n<p><a href=\"https:\/\/salford-repository.worktribe.com\/person\/1168008\/cristina-vasilica\">Cristina Vasilica<\/a> \u2013 Joint PI<\/p>\n\n\n\n<p><strong>Co-investigators:<\/strong><\/p>\n\n\n\n<p><a href=\"https:\/\/salford-repository.worktribe.com\/person\/1176924\/lisa-garwood-cross\">Lisa Garwood-Cross<\/a> &#8211; Co-Investigator (Social Media)<\/p>\n\n\n\n<p>Ian Drumm &#8211; Co-Investigator (use of AI)<\/p>\n\n\n\n<p><a href=\"https:\/\/salford-repository.worktribe.com\/person\/1886392\/currie-moore\">Currie Moore<\/a> \u00ad- Co-Investigator (Carer Research Lead)<\/p>\n\n\n\n<p>Rachel Katz (Research Fellow)<\/p>\n\n\n\n<p>Rob Finnigan &#8211; Co-Investigator (KIN Founder\/<strong> <\/strong>NW Clinical Network Patient Voice Lead)<\/p>\n\n\n\n<p>Andy Henwood &#8211; Co-Investigator (KIN Patient Moderator)<\/p>\n\n\n\n<p>Holly Loughton &#8211; Co-Investigator (KIN Patient Moderator)<\/p>\n\n\n\n<p>Heather Jayasekara &#8211; Co-Investigator (KIN Information Manager)<\/p>\n\n\n\n<p><strong>Partners<\/strong><\/p>\n\n\n\n<p>Kidney Care UK \u2013 Mr Paul Bristow<\/p>\n\n\n\n<p>Royal Liverpool Hospital NHS Trust \u2013 Patti OKane, Dr Asheesh Sharma<\/p>\n\n\n\n<p>Lancashire Teaching Hospitals NHS Trust, Dr So Beng, Lisa Morris, Louise Proctor<\/p>\n\n\n\n<p>Salford Royal Hospitals NHS Trust \u2013 Dr Rachel Middleton<\/p>\n\n\n\n<p>Manchester Royal NHS Trust &nbsp;\u2013 Kidney Patients Association \u2013 Guy Hill<\/p>\n\n\n\n<p>York NHS Trust \u2013 Mr Paul Laboi<\/p>\n\n\n\n<p>Bradford NHs Trust \u2013 Dr John Stoves<\/p>\n\n\n\n<p>Association of Nephrology Nurses (ANN UK)<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"1024\" height=\"576\" src=\"https:\/\/hub.salford.ac.uk\/applied-health-research\/wp-content\/uploads\/sites\/228\/2025\/06\/KIN-photo-1024x576.png\" alt=\"\" class=\"wp-image-2781\" srcset=\"https:\/\/hub.salford.ac.uk\/applied-health-research\/wp-content\/uploads\/sites\/228\/2025\/06\/KIN-photo-1024x576.png 1024w, https:\/\/hub.salford.ac.uk\/applied-health-research\/wp-content\/uploads\/sites\/228\/2025\/06\/KIN-photo-300x169.png 300w, https:\/\/hub.salford.ac.uk\/applied-health-research\/wp-content\/uploads\/sites\/228\/2025\/06\/KIN-photo-768x432.png 768w, https:\/\/hub.salford.ac.uk\/applied-health-research\/wp-content\/uploads\/sites\/228\/2025\/06\/KIN-photo-1536x864.png 1536w, https:\/\/hub.salford.ac.uk\/applied-health-research\/wp-content\/uploads\/sites\/228\/2025\/06\/KIN-photo.png 1920w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>The award-winning Kidney Information Network (KIN) connects people living with chronic kidney disease in North of England. Innovation funding drives the creation of KIN UK; multiple resilient micro-communities, improving health literacy\/equitable information access for &gt;10,000 people living with CKD, carers and clinicians.&nbsp; The&nbsp;Kidney Information Network&nbsp;is a joint venture between the University of Salford, NHS trusts [&hellip;]<\/p>\n","protected":false},"author":421,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-2086","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Expanding the Kidney Information Network (KIN) to Innovate and Drive Impact - Centre for Applied Health Research<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/hub.salford.ac.uk\/applied-health-research\/expanding-the-kidney-information-network-to-innovate-and-drive-impact\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Expanding the Kidney Information Network (KIN) to Innovate and Drive Impact - Centre for Applied Health Research\" \/>\n<meta property=\"og:description\" content=\"The award-winning Kidney Information Network (KIN) connects people living with chronic kidney disease in North of England. 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