Mixed Methods Evidence Synthesis for Equity: To Identify Inclusive Education and Information Interventions for All People Managing Early-Stage Chronic Kidney Disease

Our overall aim is to support improvements in the delivery of information and education for patients with early-stage chronic kidney disease (CKD) and their families using evidence synthesis.

Objectives include:

1. Evaluate the effectiveness and cost-effectiveness of interventions aimed at delivering information and education to patients with early-stage CKD and their families.
2. Explore, with an EDI lens, the factors that may enhance or limit the beneficial delivery of such interventions.
3. Identify key areas for future research.

To do this we will:

1. Undertake a systematic review of both quantitative evidence of the effectiveness and cost-effectiveness of interventions aiming to deliver information and education to patients with early-stage CKD and their families.
2. Undertake a systematic review of qualitative evidence of studies which have explored the experience of providing and receiving CKD education and information.
3. Use the newly developed PRO-EDI tool within both systematic reviews to consider how EDI principles have affected the design, evaluation, and implementation of interventions.
4. Conduct an overarching synthesis through development of a logic model that brings together the findings from the two systematic reviews.
5. Use a multi-method consultation approach (workshops, social media, telephone, and email) to identify and discuss i) current provision of information and education to people with early-stage CKD and their families, and ii) what the findings mean for clinical practice, service provision and the future research agenda – with people who have experienced early-stage CKD, their families and carers, health care professionals from primary and secondary care settings, and third sector organisations. 

Professor Paula Ormandy from the University of Salford is the Joint Lead Applicant, with Professor Helen Hurst being the Joint Prof/Clinical Academic Consultant Nurse.

Funder:

Health Technology Assessment (HTA) Programme, National Institute for Health Research (NIHR)

Team  

Professor Paula Ormandy – University of Salford (Joint Lead Applicant)

Professor Helen Hurst (Co-Applicant) Joint Prof/Clinical Academic Consultant Nurse, University of Salford

Professor Joanna Thompson-Coon (Joint Lead Applicant) Professor of Evidence Synthesis & Health Policy, University of Exeter

Mr Andrew Henwood (Co-Applicant) Co-Chair Kidney Patient Involvement Network, Patient Involvement Facilitator, Peer Educator Provide patient perspective

Ms Holly Loughton (Co-Applicant) Person with lived experience, Patient Involvement Facilitator, Chair of Young Adult Kidney Group

Professor Claire Hulme (Co-Applicant) Professor of Health Economics, University of Exeter

Dr Shivani Sharma (Co-Applicant) Associate Professor Health Inequalities, Exec Lead Equality, Diversity and Widening Participation, University of Hertfordshire

Dr Tom Blakeman (Co-Applicant) GP, Clinical Senior Lecturer, Bellbrooke Surgery Leeds & NIHR School for Primary Care Research, University of Manchester

Mrs Morwenna Rogers (Co-Applicant) Research Fellow (Information Science), University of Exeter

Dr Magdalena Rzewuska Díaz (Co-applicant) Advanced Research Fellow Health Services Research Unit, University of Aberdeen

Dr Noreen Orr (Co-Applicant) Research Fellow, University of Exeter 

Professor G.J. Melendez-Torres (Co-Applicant) Professor of Clinical and Social Epidemiology, University of Exeter