Mitigating Poor Cultural Adaptation as a Barrier to South Asian People Consenting to Take Part in Kidney Research in the UK

There is a national priority to improve representation from minority ethnic people in kidney research. This is important because of the higher need for kidney care in certain ethnic communities. A specific barrier to inclusion of South Asian people is the lack of cultural adaptation in research. This is often because of explicit exclusions that fail to account for culture such as limiting participation to English language. There are also understanding gaps in research teams that amplify obstacles. This project will identify the scale of exclusion of South Asian people from kidney research with a focus on exclusion based on language, why this happens, and what can be done to mitigate disadvantage in future. The project will partner with regional (East of England) and national patient advocacy groups and a range of stakeholders to ensure that the recommendations and follow-on plans result in meaningful impact in kidney research and beyond.

Funder: 

NHS England ICS Research Engagement Network (REN) Development Programme

Team  

Professor Paula Ormandy, Co-chair of the National Kidney Patient Involvement Network (KPIN), University of Salford

Prof Shivani Sharma (Research Lead), Aston University

Dr Enric Vilar (Joint Project Lead- Clinical), East and North Hertfordshire NHS Trust

Kirit Modi MBE,  Lister Area Kidney Patients Association

Partners:

Aston University

East and North Hertfordshire NHS Trust Lister Area Kidney Patients Association